Dementia with Lewy bodies
Dementia with Lewy bodies is diagnosed when someone has the symptoms of dementia either before or at the same time as developing Parkinson’s-like problems with movement (called motor symptoms). But in some cases of dementia with Lewy bodies, no motor symptoms develop at all.
This information looks at the symptoms and causes of dementia with Lewy bodies. It provides practical advice on how life can be made easier for the person affected and their family, friends and carers.
If you prefer, you can read this information online.
We also have information on Parkinson’s dementia (PKFS58).
If you just order Parkinson's information resources then delivery is free.
If you order anything else, or a combination of products and resources, then the following charges apply
We offer the following delivery options for orders to the UK mainland and Northern Ireland:
- £3.95 standard deliverydelivered within 3 to 5 working days
- £5.95 next day delivery order before 3pm. Direct despatch products delivered from the supplier are not eligible for next day delivery.
Small packages will be delivered by Royal Mail and large packages by courier. If you're out when the courier attempts delivery, you will receive a card with details of how to arrange re-delivery.
Alternatively, your parcel may be left in a safe place, such as your porch. When buying online, please write any special instructions in the 'delivery instructions' section at the checkout.
We will work very hard to deliver your order promptly. On rare occasions, we regret that deliveries may be delayed. Please allow 7 working days for delivery before getting in touch with our team on 0844 415 7863 or email@example.com
We also deliver to non-UK mainland addresses.
Please email firstname.lastname@example.org and ask for a delivery charge quote before ordering by phone or email.
We are unfortunately unable to deliver to PO Box numbers.
For more information on deliveries, please call 0844 415 7863 or email email@example.com
In some cases, products may be dispatched directly from our supplier. We try to meet all demand within our timeframes. However some products may take longer to arrive.
Certain Daily Living Aids, such as the Pivotell Advance, and our Christmas hampers, are examples of products dispatched directly from the supplier.
If your order contains a mix of direct dispatch products and products dispatched from our warehouse, you will receive your packages separately. These may arrive on different days. Please bear this in mind and wait a few days before enquiring about incomplete deliveries.
Direct despatch products are non eligible for next day delivery
You will be required to choose a date for delivery when ordering one of our Christmas Hampers. If you don't specify a delivery date, your hamper will be delivered on the next available date. We can't supply hampers containing alcohol to under 18s.
If you have any queries about your order after delivery, please use the contact details on the enclosed postcard, quoting your order number.
We reserve the right to retain the delivery charge paid, plus a 20% handling charge, on all consignments which are refused delivery and returned to us without justification or due to customer error.
Notice of damage, defect or incorrect delivery
If your goods arrive damaged, incomplete, incorrect, or if there is a shortage against the quantities specified on your delivery note, please notify our Customer Service team on 0844 415 7863 or firstname.lastname@example.org within 3 working days, quoting your customer number and the delivery note number.
Should an expected delivery or part delivery not arrive, you must notify us within 10 working days of the invoice date.
Christmas hampers: You must notify us of any claims, damages or shortages within 14 days of delivery. Goods must be retained for inspection and the carriage sheet must be signed. The hampers will contain a postcard with a number to quote when making an enquiry.
We encourage you to place your Christmas orders early to avoid delayed postal deliveries.
Cancellations and returns
You have the right to cancel your order within 14 calendar days of receiving all of your goods. To do this, please inform us by:
Phone: 03330 030 523
Post: Parkinson's UK Sales Ltd
PO Box 637
Please note that this address is for letters only. Parcels will not be accepted. Please use the address below for parcel returns.
If you choose to cancel your contract with Parkinson's UK Sales Ltd, you will be entitled to a full refund, including the costs of standard delivery, provided the goods are unused and in perfect condition.
We are unable to provide a refund of the delivery charge when only part of your order is cancelled. If the goods are deemed to have lost value due to unnecessary handling, we have the right to make a deduction to your refund to cover this loss.
Any reimbursement will be made by the original payment method within 14 days of receiving the return, or proof of return, unless otherwise expressly agreed.
Returning undamaged products will be at your own cost. You should return these within 14 days of cancellation, unless otherwise agreed with us in writing. We will not be held responsible for any loss or damage to products in transit. For this reason, we recommend you use a recorded delivery service.
If your item is faulty or has been damaged in transit, please contact us to discuss whether you would like to receive a replacement or a refund. In this case, we will bear the costs of providing a replacement and return delivery. Please make sure you supply proof of postage costs.
Please download and complete our Returns Form (PDF, 264KB) and send it with the products you're returning to:
Parkinson's UK Sales Ltd
PO Box 637
For more information on returns, please call us on 03330 030 523.
Please note that charitable donations made with orders cannot be refunded.
VAT exemption, or VAT relief, allows people diagnosed as chronically sick or disabled* to buy certain items at 0% VAT. Several products in our Daily Living Aids range qualify for VAT exemption.
Who is eligible for VAT exemption?
If the person for whom the products are being bought has Parkinson's or another condition the medical profession considers 'chronically sick or disabled', they qualify.
You can order items on behalf of someone who qualifies for VAT exemption for example, if you're a carer or family member. However, the person who qualifies must sign a written declaration.
The VAT Act 1983 has severe penalties for anyone who uses a document they know to be false to secure VAT exemption.
What proof do we need of your condition?
The government requires a simple declaration of your medical condition (or the condition of the person you're buying for).
You must provide:
- the name and address of the person with the condition
- the medical condition of the person eligible for VAT exemption
How to order VAT exempt products
You can order online, by phone, or by post. The information we need varies depending on your order method:
- Online: By purchasing a VAT exempt product, you are confirming that you are eligible to buy. You will also be asked during checkout whether you are eligible.
- By phone: You'll need to provide details of the person eligible for VAT exemption along with their National Insurance Number.
- By post: Your catalogue comes with a declaration for you to complete. Download a declaration form (PDF, 349KB)if you need a new one or don' have a catalogue. The form must contain the information of the person eligible for VAT exemption.
Please be aware that unfortunately you can't claim back VAT after you've bought something. Please ensure you choose the correct VAT exempt variant at the point of purchase.
*What does 'chronically sick or disabled' mean?
This wording is not determined by Parkinson's UK. The government considers a person to be 'chronically sick or disabled' if he or she has:
- a physical or mental impairment which has long-term and substantially adverse effects on his or her ability to carry out everyday activities
- a condition which the medical profession diagnoses as a chronic sickness, such as Parkinson's, diabetes or a terminal illness
A person is not considered to be 'chronically sick or disabled' if they/re elderly but otherwise able-bodied. It doesn't apply if they/re temporarily disabled or incapacitated, for example with a broken limb, either.
If you're in any doubt whether you are eligible to receive goods or services with VAT exemption you should consult Notice 701/7 VAT Reliefs for disabled and older people. You can also call HMRC's National Advice Service on 0300 123 1073.